Our recent webinar on BCG 101 was a huge success and well attended by many members of our bladder cancer community. Thanks to all those who attended and asked questions to our guest speaker, Dr. Madhuri Koti. Due to the popularity of this webinar, the recording is now available on our website. We are currently working on an upcoming podcast (in English) and a second webinar (in both languages) to answer any additional questions that our community might have about BCG as a treatment for bladder cancer. For more information, visit our website at www.bladdercancercanada.org.

For #BladderCancerAwarenessMonth in May, Bladder Cancer Canada volunteer Blair Price shares his story and how BCC plays a role in his journey. Audio description for the blind or visually impaired below: Text: Bladder cancer is the 5th most common cancer diagnosed in Canada. Government of Canada. Bladder cancer in Canada. https://www.canada.ca/en/public-health/services/publications/diseases-conditions/bladder-cancer-canada.html. Accessed April 2021. Visual: Background of yellow flower Text: More than 90% of bladder cancer cases occur in adults aged 50+. Visual: Background of flowing stream with sunlight reflected Text: Like Blair Visual: Photograph of Blair standing outdoors near a road Audio: Hello my name is Blair Price, I’m 67 years old. I live in Richmond Hill, Ontario. Visual: Blair speaking to camera from his living room Audio: I’ve been married 43 years and we have a son, 28 years old. Visual: Photograph of Blair and his wife at their wedding. Photograph of Blair’s son leaning against a railing Audio: I’m interested in computers, I play the guitar and I like to read. I do quite a bit of walking, I try to walk five to 10k every day. Visual: Photograph of Blair playing guitar on outdoor balcony. Photograph of Blair standing on steps outside of home Text: How did you know something was wrong? Visual: Background of blades of grass moving in wind, and sunshine Audio: Unfortunately one day when I voided I looked in the toilet and saw red. Visual: Blair speaking to camera from his living room Audio: I was really concerned. I phoned my family doctor the next day and fortunately he was able to get me in to see a urologist the next week. Visual: Various photographs of Blair Audio: I was diagnosed with T-1 low grade urothelial bladder carcinoma. Visual: Blair speaking to camera from his living room Text: What went through your mind when you were diagnosed? Visual: Background of lemon trees moving in wind Audio: My wife and I were devastated upon hearing this news. Visual: Photograph of Blair and his wife sitting at a table with a birthday cake Audio: I told my family members and my son the next day and let them know exactly what was going to be going on with me. Visual: Photographs of Blair with various friends and family Audio: It’s very disheartening when you’re always waiting to get results back from CAT scans, cystoscopies, and it really puts a lot of attention on your life. Visual: Blair speaking to camera from his living room Audio: But, you know, you have to look after yourself and your health is very important. Visual: Photograph of Blair standing indoors Audio: I try and be a proactive person. I really don’t want cancer to define who I am, and I try and live every day as best as I can. Visual: Photograph of Blair with family Text: Can you describe your journey? Visual: Background of lemon trees moving in wind Audio: My journey is ongoing, you know, for four and half years now. It’s been quite hard on me. Visual: Photograph of Blair sitting in a hospital room, with blue mask on Audio: I was on the internet one day looking for more information and I found BladderCancerCanada.org and I applied to become a volunteer. Visual: Blair speaking to camera from his living room. Photograph of Blair and another man at an event, sitting behind a table with a Bladder Cancer Canada tablecloth. Audio: I thought it would be nice if I was able to give back and help other people with what I’ve been going through. Visual: Photograph of Blair sitting in a chair and reading Text: How do you support others who are on a similar journey? Visual: Background of lemon tree Audio: I really enjoy being able to talk to bladder cancer patients and their caregivers because the fear of the unknown is a horrible feeling, and when you’re armed with good knowledge it’s good because you feel like you have more control of your disease. Visual: Blair speaking to camera from his living room Audio: My personal journey through all this ordeal I’ve gone through over the last four and a half years has taught me to appreciate the finer things in life, the smaller things. Visual: Photograph of Blair in a car Audio: I would tell other patients and caregivers that are going through a similar journey such as mine to be thoughtful and be honest with yourself, and make that sure you discuss your disease. Visual: Photograph of Blair and his wife at their wedding. Portrait photograph of Blair with his wife and their son at about 3 years old. Audio: There are good days and there’s bad days, as with any disease. Visual: Photograph of Blair with his wife and their adult son, and another woman Audio: Bladder Cancer Canada, BCC, has excellent information and the role they play is outstanding in helping people that are dealing with bladder cancer. Visual: Blair speaking to camera from his living room. Photograph of Blair standing near a road outdoors. Text: This video was made possible by: EMD Serono logo, Pfizer logo. Visual: White background

Présenté par : Dr. Normand Blais